Archive for the ‘research’ Category

Boston: Participate in GF Website Research

June 15, 2009

A friend found the following on a LiveJournal site.  If you live in a respectable distance to Kendall Square and want to participate in some gluten free research, send these people an email:

I’m looking for individuals in the Boston area with Celiac Disease who are able to come in for an hour to my company’s offices in Kendall Square (right by the T) and test a new Gluten Free service we are releasing very soon.
To participate, you must be able to come into our offices in Kendall Square. In exchange for your time, some compensation will be offered. 😀
If you’re interested in testing our service, please reply to with the following information.
Your Name:
When You Started Living Gluten Free:
Your Occupation:
Your Age:
Your City & State:
What Time of Day Works Best?
Thank you! We’re eager to get fresh eyes and opinions. Looking forward to hearing from you 😀

I’m going in sometime this week.  Compensation is a $25 Amazon gift card.  This company, Zeer, I think is fairly new; I saw them hiring on Craigslist not too long ago when I was newly diagnosed, unemployed and trawling websites for jobs.  I almost applied, but then I got my permanent gig, which I am glad to have.

NYC was great, and I got to try a lot of fun GF food.  In other news, the husband and I are attending a Celiac round table discussion at Beth Israel tonight with renowned celiac dietitian Melinda Dennis and others.  This is the first official thing I’m going to as a celiac since being diagnosed in April, since I couldn’t get an appointment with Melinda until late July!  I’ll post a debriefing after the meeting.


Interesting Factoids about Celiac

May 9, 2009

I have an RSS feed on the forums page.  This week, I read an interesting recent post on Celiac facts that came from a recent lecture at an in Indiana celiac group.  Someone took notes at the lecture and posted them for everyone.  The whole post is worth reading, but I’m reposting some of the factoids that I found most interesting:

  • 1 out of 133 in general population have Celiac (from what I’ve been reading, the number of celiac cases has increased because of newer, better, more specific tests).
  • The connection of gluten to Celiac was identified only 61 years ago, and came as a result of WWII.  Grains like wheat were in short supply then, and people found that celiac children’s health improved during this low-wheat dietary period!
  • Gluten is the only protein the human body can not break down with enzymes. The protein is toxic for a celiac.
  • Since Celiac is the only autoimmune disease for which the trigger is known and the disease progression can be reversed, it is being used as a model by which to study autoimmune disease.  Currently many scientists are switching from studying autoimmune diseases such as Type I diabetes or MS to Celiac research (also on the board was an article suggesting that narcolepsy is also an autoimmune disease, which I think is just wild!)
  • The most current research finds that the ideal time to introduce gluten to an infant, in order to decrease the likelihood of developing Celiac, is at 12 months.